Cystic Fibrosis Great Strides - 2025
The Cystic Fibrosis Foundation Great Strides walk was on May 10 and it was, as always, a beautiful event. Ashley was off on the Senior camping trip and Thomas had a last-minute tennis tournament. So it was just me! The 2025 Ambassador was a woman named Robyn (for more information ) and she told her story before the walk. Wow - she is inspiring! She spoke about how a relatively new medication called Trikafta (for more information ) has dramatically improved her quality of life. Trikafta has reduced the need for lung transplants, improves lung functions, increases lifespan, reduces hospitalizations and has helped CF patients view their disease as a more manageable chronic condition rather than a rapidly progressing life threatening disease. Isn't that wonderful!! The CFF (and the walk you have helped sponsor) played a critical role in the research and approval of Trikafta. (Trikafta is made by a company called Vertex. In one of these weird coincidences, I listened to a Pricewaterho...