Cystic Fibrosis Great Strides 2023
Great Strides is meant to be a walk, a stroll really. But we took it pretty seriously - passed the pace walkers - and finished first! Yes! That is how enthusiastic we are about helping change CF from Cystic Fibrosis to Cure Found ! Ashley had a last minute softball event so it was just Thomas and I representing all of our wonderful donors - some who have donated for 13 (!!) years. Thomas wore the "team leader" lei with pride! Before the walk there were a couple of speakers. One was the grandparent of a 9 year-old CF patient. He spoke about how grateful he is that CF treatments (brought about by CFF research) have increased the lifespan of CF patients - 53 years now up from 38 years 10 years ago. A 42 year-old CF patient spoke about the support and love he has received from his parents - taking him to appointments, helping with breathing treatments, being there every step of the way. Hearing individuals directly affected by CF is powerful. (One year they had me MC the event - ...