Posts

Cystic Fibrosis Great Strides - 2026

Image
  Great Strides 2026 was last weekend in Walnut Creek and it was glorious! The sun was shining, the sky was blue, and this is the first thing I saw as I walked up to check-in. Tara is why I walk. She is why I have raised money for CF research for 17 years . Due to an emergency at home, I missed the opening speeches. That's historically my favorite part of the event - I love hearing from CF survivors and their family and I love hearing about all of the great research being done because of your donations. So it was an incredible treat when the CFF Northern California director told me she had someone she wanted me to meet. She told me that one of the volunteers saw the sign of Tara and said "I knew her!" Stephanie's husband had CF and went to CF camps with Tara - he passed away in 2013, when his daughter, who was also there last week, was 3 years old. Stephanie and I shared some fun Tara stories and she is going to dig out some old pictures of Tara and send them to me. ...

Thank you for your CF donation - 2026

Image
Thank you to the following individuals for making donations in 2065 (our 17th year of fundraising) to either the  Tara K Telford Graduate Student Award at UC Davis  or the  Cystic Fibrosis Great Strides event .  Your generosity is appreciated! If you make a donation to Tara's fund, please let me know so I can properly thank you - I won't get a notification. Donation information can be found here:  https://nystromfam.blogspot.com/2026/04/cf-fundraising-2026-17th-year.html CFF = Cystic Fibrosis Foundation donation UCD = Tara K. Telford Graduate Student Award at UC Davis donation Michelle Ford - CFF - donated within 8 minutes of me sending the email!! Ryan Long - CFF - 14 years! Gina Piper - UCD - 12 years! Molly Obert - CFF Kim Fillmore - CFF Shannon DeCola - CFF Erin Haley - CFF - 16 years! Bruce and Jean Kelley - CFF - 14 years! Margo Clarke - UCD - new to the honor roll Keith Yandell - CFF - most generous donation we've ever received - new donor Mark Tanis...

CF Fundraising - 2026 - 17th year!

Image
  Hello everyone! This is my 17th year raising money to help find a cure for cystic fibrosis, and I do it in memory of my dear friend Tara, who passed away on November 18, 2017. Many of you have never met Tara - but she knew about you. She knew that people who had never crossed her path chose to care about her, and that meant everything to her. It meant everything to me too. THANK YOU FOR YOUR PAST DONATION! Tara was full of positivity throughout her entire life - through illnesses, hospital stays, medications, pain, and uncertainty. She made the world feel a little brighter just by being in it. She is a reminder that life is precious, life is short, and that everything is going to be OK. Have hope. ---  GREAT NEWS FROM PAUL (TARA'S HUSBAND) I heard from Paul in August and wanted to share this update: the UC Davis fund has grown enough this year to support TWO grants — meaning two graduate students are receiving funding for cystic fibrosis research. That is your impact. Every ...

Cystic Fibrosis Great Strides - 2025

Image
  The Cystic Fibrosis Foundation Great Strides walk was on May 10 and it was, as always, a beautiful event. Ashley was off on the Senior camping trip and Thomas had a last-minute tennis tournament. So it was just me! The 2025 Ambassador was a woman named Robyn (for more information ) and she told her story before the walk. Wow - she is inspiring! She spoke about how a relatively new medication called Trikafta (for more information ) has dramatically improved her quality of life. Trikafta has reduced the need for lung transplants, improves lung functions, increases lifespan, reduces hospitalizations and has helped CF patients view their disease as a more manageable chronic condition rather than a rapidly progressing life threatening disease. Isn't that wonderful!! The CFF (and the walk you have helped sponsor) played a critical role in the research and approval of Trikafta. (Trikafta is made by a company called Vertex. In one of these weird coincidences, I listened to a Pricewaterho...

CF Fundraising - 2025 - 16th year!

Image
This is my   16th year   raising money to help find a cure for cystic fibrosis. I do this in memory of my friend, Tara, who passed away on November 18, 2017.  I know there are a lot of deserving causes to champion. Every little bit adds up and, while I hope you support CF research,  I really just want all of us to make the world a better place .   Tara was full of positivity, throughout her life - throughout her illnesses, hospital stays, medications, pain and discomfort.  She made the world feel a little brighter.  She is a reminder that life is precious - life is short - and everything is going to be OK ... have hope.   Today  I am asking for :   1) Please consider making a donation to the  Tara K Telford Graduate Student Award for Cystic Fibrosis Research  at UC Davis. You can do this online from the following link.  Please let me know that you have donated to this fund so I can properly thank you. I will not ...

Thank you for your CF donation - 2025

Image
Thank you to the following individuals for making donations in 2025 (our 16th year of fundraising) to either the  Tara K Telford Graduate Student Award at UC Davis  or the  Cystic Fibrosis Great Strides event .  Your generosity is appreciated! If you make a donation to Tara's fund (and I hope you do - that is where I donate every year), please let me know so I can properly thank you - I won't get a notification. Donation information can be found here:  https://nystromfam.blogspot.com/2025/02/cf-fundraising-2025-16th-year.html CFF = Cystic Fibrosis Foundation donation UCD = Tara K. Telford Graduate Student Award at UC Davis donation Gina Piper Katie Loughnot Ryan Long Bill and Maggie Foley Erin Haley (15 years!!) Michael Kan Julie Pierron Corey McIntyre Christine Butler Shannon DeCola Joy and Jared Goor (15 years!!) Hassan Mahmoud Jenn Bell Bill and Sharon McKee Casey Evans Michael Kan (again ... yay!) Bruce and Jean Kelley Angie Rohr Loy and Marge Hayes Man...